Tami, your story is inspiring. Reading about your life with Oliver brings lots of things into perspective. You are a great and caring mom. Oliver is adorable, by the way. Enjoy your wonderful, special little boy.

I was just reading through the guestbook on postpals, and saw your post asking how to have Oliver registered as a Pal to receive post, that you left at the end of April. I didn't see anyone reply to you on the postpals guestbook, and I don't see Oliver on the Postpals site, so I thought you might still want to know how to apply for him to be a Pal. You need to fill in the contact form here: http://www.postpals.co.uk/contact.php put "Add Pal" under Type. I think Postpals then send an application form. You can also email them: info@postpals.co.uk More information is here: http://www.postpals.co.uk/ans.php?id=18 and it does say "We also request that applicants have a mental age of 2 years or over to be able to benefit from the project." I don't know how that applies to Oliver. I know it won't help much with your worries, but I imagine it would be nice for Oliver to have pictures to look at and things to play with in the post, and for you to know that people are thinking of him. Good luck with it. I hope Oliver is enjoying nursery.

What a beautiful little boy you have and i feel so much for you, my daughter had an undiognosed metabolic problem and we have been told she may have what your son has. My 17 month old daughter was a bit under the weather one day(nothing major) the next day she went to sleep and i couldn't wake her, she was breathing very deep and fast and very floppy. She has spent 2 months in hospital and had had 2 mini strokes which means her right side doesn't function properly, but she has managed to gain the use of her right leg but she cant walk. Her right hand still doesn't function, to top it off she is now having seizures (which she takes medicine for) Whilst in hospital she has severe high lactate levels in her blood (about 12 and they told me its only supposed to be 2) She cries quite a lot but has developed terrible mood swings! one minute she is ok, the next she screams the place down. She refuses to settle at night at all and absolutely hates going to sleep. I just thought i would say hello, i worry very much about her future, at the moment the docs have put her on alsorts of medicines Forgot to to mention her EEG showed that one side of her brain is working slower than the other and her MMR scan showed patches of damage from the strokes, its so difficult because she was absolutely fine for 15 months of her life (maybe a little slow now i think about it but its hard to tell with babies) She still smiles a lot but she cant tell me whats wrong, how do you cope?? We nearly lost her twice, i don't know what i would do without her.

Hi Tami, I met you through adding you to FB for Treasure Isle and i have just read through your website on Oliver. I just wanted to say how it melted my heart away at what Oliver and yourselves have went through each and everyday and what you yet still to face ahead. I have 2 sons and a daughter of my own and have been through a few problems and hospital visits with the youngest 2 in their infant lives. Adam was prem by 10 wks and faced some probs but has grown up now and is a 19yr old doing well. Louise my 15 yr old daughter had several seizures from the age of 6 mths to 7yrs which were febrile convulsions which has now turned outto be caused by kidney problems. I know when she took them at the beginning i was very scared and panicked all the time, any sign of illness you just knew that it was going to start all over again, anyway this is not about me or my family. I want you to know and to remember you and your family are not alone as there is alot of support out there and you will have a lot of friends at home and on here to help support you anytime. Oliver is a beautiful little boy and a fighter as he has proved already, you and danny are also so loving and very courageous and very proud of Oliver and it shines right out at everyone who reads your website, if you need any support or help with any fundraising i will be so glad to help even though i stay miles away up in scotland. All my thoughts and prayers are with you all love Caroleanne xxx

i would just like to say your story of life with mitochondrial disease expresses just how tragic this disease is,we have a 3 1/2 year old grandaughter who was diagnosed with melas mitochondrial disease in february 2010 she has been in alder hey childrens hospital since february 9th and is still there as i write this message to you it has completely destroyed us as a family because it is so hard to accept we had to go through 6 weeks of leoni being on a ventilator and it was so hard watching her as u have said with oliver drugs are being pumped in from every part of there body my heart goes out to your family and oliver looks so beautiful i hope we can kee in contact with you as we just need some kind of help along the way through this hard time